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Athletes with Disabilities (Watts Library)
Price : $10.92
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Chasing Miracles: The Crowley Family Journey of Strength, Hope, and Joy
Price : $22.95 $10.00
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: - ISBN13: 9781557049100
- Condition: NEW
- Notes: Brand New from Publisher. No Remainder Mark.
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A personal memoir from the family that inspired the film Extraordinary Measures, starring Brendan Fraser, Harrison Ford, and Keri Russell—a father’s story of his determination to save the lives of his two youngest children born with a rare genetic disorder and finding hope, strength, and joy despite extraordinary challenges.
When John and Aileen Crowley learned that their two youngest children had a rare and little understood genetic disorder, they didn't hope for miracles: they made them happen.
In 1998, 15-month old Megan and 4-month old Patrick were diagnosed with Pompe disease, a rare and fatal neuromuscular disorder that affects only a few thousand children worldwide, usually leaving them with little to no muscle function, enlarged hearts, and severe difficulty breathing.
John Crowley was absolutely determined to find a treatment to save his children's lives. At the age of 31, he walked away from the corporate world to help co-found a start-up biotech company, focused exclusively on developing a treatment for Pompe.
A truly uplifting and inspiring book that captures this remarkable family's everyday life, this is a memoir about life and love; about coping with adversity; and, most importantly, about what it means to never, never quit.
Customer Review :
Wonderful and moving book
I picked this book up a few days ago and I thought it was wonderful. I heard about this family on TV and was curious, and I'm so glad I read this book. It was funnier than I expected, since it is about a serious topic, and has interesting lessons about parenting in general. I was very moved by the story and I will be giving this book as a gift to several of my friends.
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Chasing Miracles is a great book!
John and Aileen have crafted a wonderful story of hope that is both heartwarming and full of inspiration. His family has faced ordeals that most people could never imagine. I took away many life lessons from this book and found myself in tears during various parts of the book as I learned about Megan's and Patrick's fight for survival. The book is written in a conversational way that makes it easy to read and full of emotion. John explores his roots, marriage, challenges against medicine and even a funny story about getting his street "paved" by the street department that made me laugh. Some other insights include John's research into future medicines, his thoughts about God and how he somehow remains sane against challenges that I can't imagine, even though I've been through a lot in my life. TWO THUMBS UP!
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Must Read
One of the best books I have read in a long time. You will laugh and cry as you turn the pages of this heart warming story about an extraordinary family who try to give their children an ordinary life.
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Inspirational
Inspirational book that took me through a roller coaster of emotions ... hilariously funny, tense, poignant, and thoughtful. John Crowley writes with such transparency about marriage, fatherhood, and family. Megan, the 4th grader confined to a wheelchair and on a ventilator, has such great wit and wisdom - a real inspiration to "able-bodied" kids. Great read for families, Fathers, business people, Moms ... and, yes, kids.
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The God I Love: A Lifetime of Walking with Jesus
Price : $22.99 $4.75
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The Silver Medallion award-winning memoir by Joni Eareckson Tada that captures her heart and thoughts by portraying her walk with God in the events, dialogues, memories, images, and scenes of her life.
Customer Review :
A Christian heroine
Joni Eareckson Tada is the author of several books, but this is the most revealing look at her life ever. She spends several chapters talking about her childhood and her early teen years before her paralyzing accident. Joni talks about the suicidal thoughts she had after she became paralyzed. "The God I love" tells very sad stories, humorous incidents, poignant recollections, and the romantic story of how Joni and Ken Tada fell in love. Through it all, Joni's devout Christian faith has always been growing.1 Today, besides being an author, artist, and advocate for the disabled, Joni Eareckson Tada is an outspoken opponent of embryonic stem cell research. It's too bad the general public has not heard as much from her as they did from the late Christopher Reeve (as much as I respected his and his wife's courage.) Joni Eareckson Tada is a modern Christian heroine.
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The BEST so far!!!
This is by far the best of all the books that Joni Eareckson Tada has written. Once I started it I couldn't put it down. I have a personal interest in anything Joni writes..I also had a diving accident and I'm also a quadriplegic. Joni expressed it so well in this book...living in a wheelchair does not have to be a burden but an ADVENTURE! God is GREAT and I wish everyone could come to know the love and peace He gives us.
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A Wonderful Book!
This is a wonderful, inspiring, honest, heartwarming, encouraging and inspirational book. I so enjoyed it, it was hard to put down. I learned so many things about Joni I hadn't heard before and plan to buy it on tape to share with others. What an encouragment to trust in our Lord no matter what! Don't miss this one.
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This autobiography may be Tada's best work to date
For Joni Eareckson Tada's memoir to turn out to be anything less than stellar would be difficult to imagine. A long-time bestselling author with an amazing story and a highly successful ministry, Tada outdoes her remarkable record with an autobiography that may be her best book so far.
The basics of Tada's life are well-known in Christian circles. Reared in a Christian home, Joni Eareckson was planning to enter Western Maryland College in the fall of 1967. But a trip to a Chesapeake Bay beach in July of that year permanently changed her life. A "simple" dive went wrong, and Joni ended up paralyzed from the neck down, confined to a wheelchair for life. In the following decade, Christians in America would become familiar with the once-unknown young woman who had learned to draw and paint with her mouth and was steadily producing a successful line of artwork sold in Christian stores. Her story was told in print and on film, and her voice later became a mainstay on Christian radio. In the intervening years, she has become an advocate for the disabled, not only in the United States but also around the world.
In no previous book has Joni Eareckson --- now married to Ken Tada --- been quite so transparent and open about the highs and lows of her relationship with God, particularly in the years immediately following the accident but also amid the day-to-day frustrations that come with being dependent upon others for the basic necessities of life. Through it all --- through the extraordinary accomplishments of someone who at one time had every reason to give up on life --- you get the sense that many of Tada's inner struggles are very ordinary, very human, and therefore very easy for others to relate to.
Tada writes about social issues, such as her firsthand experience with oppression in former communist countries, with as much sensitivity as she writes about highly personal issues, like her disappointment and sorrow after learning that she was infertile. She seamlessly intersperses detailed accounts of her many international trips with loving stories about her close-knit family, her circle of friends, and her marriage to Ken. Especially poignant are passages relating to the deaths of her mother and father.
Throughout, of course, the focus always returns to Tada's relationship with God and the subtle irony inherent in the subtitle, "A Lifetime of Walking with Jesus." Even from her wheelchair, Tada "walks" with God. She writes, "Ah, this is the God I love. The Center, the Peacemaker, the Passport to adventure, the Joyride, and the Answer to all our deepest longings. The answer to all our fears, Man of Sorrows and Lord of Joy, always permitting what he hates, to accomplish something he loves...There are more important things in life than walking."
Fans of Joni Eareckson Tada's previous books will not be disappointed with this one. It's a beautifully written tribute to the love of God as seen through the life of one woman who found freedom and joy in Christ in the midst of what another might consider a cruel confinement.
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Audio CD Version is Best
The Audio CD version is Joni herself reading the book, complete with appropriate emotions. Ken does the chapter titles and the scriptures. Getting to hear Joni sing the songs and hearing her heart as events occur makes the audio version of this great book extra special. Inspiring. I found her life before the accident extreemly interesting.
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There Is Room at the Inn: Inns and B&Bs for Wheelers and Slow Walkers
Price : $21.95 $12.29
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A wonderful resource for travelers who use wheelchairs, scooters, or walkers, There Is Room at the Inn contains a delightful array of intimate, accessible lodgings throughout the nation. Grouped geographically by state, this guide features 118 lodgings in 40 states, ranging from Victorian inns and quaint B&Bs to mountain retreats, a dude ranch, and even two safari parks. Each profile includes the property's access details, with emphasis on features in the accessible guestrooms; comments from the innkeepers about access; and accessible sight-seeing suggestions. A handy checklist allows travelers to screen other potential choices. An additional chapter for innkeepers offers insight into this growing market and suggestions on making their property appeal to travelers with limited mobility.
Customer Review :
An extensive and reliable guide for identifying and booking ideal locations for physically disinclined people
There Is Room At The Inn: Inns And B And Bs For Wheelers And Slow Walkers by Candy B. Harrington is a resource and travel planning compendium of thoroughly researched information on Inn and B&B accommodations throughout America. An extensive and reliable guide for identifying and booking ideal locations for physically disinclined people traveling anywhere in the country, Candy Harrington has compiled and expertly organized an informative grouping of handicap accessible Inn and B&B lodgings by state. There Is Room At The Inn notes important details regarding the access features of each inn and B&B guest room, while offering useful comments from innkeepers regarding their own attitudes about access. Additionally enhanced with suggestions for easily-accessed sights in surrounding areas, and a checklist of questions for travelers to ask innkeepers, There Is Room At The Inn is very strongly recommended for anyone in need of a comprehensive and accurate information resource on America's most handicap accessible inns, suites, B&Bs, dude ranches, safari parks, and mountain retreats.
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Good information
We haven't used this one yet, but looking it over shows how much is out there that we didn't know about. It is helpful that the book differentiates between "slow walkers" and "wheelers", as this is something that a lot of B&B hosts don't get. Too many think "accessible" is accessible to everyone & those of us who live with "wheelers" are often frustrated to find "it ain't so". This book will help us plan our vacations more carefully and yet not be stuck with typical look-alike chain hotel rooms.
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Bible of Handicap Travel
This book is a must for anyone who is challenged, needs a wheelchair or is a slow walker, which includes many senior citizens who love to visit inns and bed and breakfast places for their nostalgia. Most of these travelers have found it difficult in a previous inn or b&b and have decided not to try any others. However, with great research and care for detailed descriptions of handicap services and amenities available, Candy Harrington has opened a whole wonderful world of travel to the challenged traveler, one that is most comforting as well as accessible. She describes these places even in safari parks and most unexpected places.This is a MUST for any slow traveler or wheelchair traveler. Excellent!
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Amyotrophic Lateral Sclerosis: A Guide for Patients and Families
Price : $39.95 $23.44
Features
: - ISBN13: 9781932603729
- Condition: NEW
- Notes: Brand New from Publisher. No Remainder Mark.
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This important book covers every aspect of living with ALS, from clinical features of the disease to an overview of symptom management to understanding its diagnosis. Major sections deal with overseeing medical care and rehabilitation, living with ALS, the disease’s advanced phase, end-of-life issues, and resources. Extensively revised and rewritten, this edition contains new chapters on the latest approaches to treating ALS symptoms, the use of noninvasive ventilators, multidisciplinary team care, new guidelines being developed by the American Academy of Neurology for patients with ALS, the use of riluzole (Rilutek), and more.
Customer Review :
Good Resource
Comprehensive, current and clear resource for patients and caregivers. A variety of authors cover a practical and emotional issues in a series of caring and well written chapters.
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Excellent Resource
I used this book religiously before my dad passed away from complications due to ALS last July. The book was very helpful to understand what was happening and what was coming. As depressing as it all is, it was better to understand the situation so I could do all I could to help my loved one. I was just looking at my copy the other day and the amount of highlighting in it and stickies hanging out of it reminded me of how used the book was.
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A top pick for those who want to be armed with the knowledge they need to deal with the disease
Lou Gehrig's disease cut short the career of a baseball icon and has cut short the lives of thousands since. "Amyotrophic Lateral Sclerosis: A Guide for Patients and Families" is a guide for victims and families of Lou Gehrig's disease and how to deal with this incurable, but treatable disease. From symptoms to medicine, to more, "Amyotrophic Lateral Sclerosis" is a top pick for those who want to be armed with the knowledge they need to deal with the disease.
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Expert Comprehensive Discussion of Causes, Treatments, and Outcomes of This Wasting Disease
Hiroshi Misumoto, MD, author of this book, has assembled articles from experts in all areas surrounding ALS (Lou Gehrig's disease). While it can become fairly technical in scope for the home user, it is an encyclopedic reference for those who suffer from the disease and those who care for them.
Usually, I avoid books with articles from many experts because often these articles are simply filler that make a short book appear long. Such is not the case with this book. Each expert has contributed advice from his or her field of experience and knowledge concerning ALS. Every issue of treatment and care is covered in this book, and there is enough information to help the patient and caregiver ask the physician specific questions and be knowledgeable enough to understand the answers.
I imagine that reading Amyotropic Lateral Sclerosis will appear daunting at first to many. However, the information is presented in readable fashion once you get started. Each subject area, covered in chapter format, can be tackled as needed, so you don't have to attempt to read this book through in a very short time.
Hats off to Mitsumoto for a well-researched, well-presented volume.
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AMYOTROPHIC LATERAL SCLEROSIS
Amyotrophic Lateral Sclerosis: A Guide for Patients and Families IT'S A LITTLE TECHNICAL, BUT SURE TELLS YOU WHAT WANT YOU WANT TO KNOW. I WILL FIND OUT TOMORROW IF I HAVE IT,
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